NF Hero Stories


The Children’s Tumor Foundation works to increase knowledge of neurofibromatosis (NF), and you - our NF Heroes - have an important role to play.

We’re looking to gather as many NF Hero stories as possible for possible future use on the CTF website, newsletters, social media, patient brochures, advocacy efforts, and more. NF may be complicated, but these stories help us better explain what NF is and how it impacts millions of people around the world.

Every story of NF is important. We want to know you--your personality, what you do, and what you wish for. Thank you for sharing your story with us!




Please answer the questions below as completely as you like. Please understand that we may only use a portion of what you submit, and we cannot guarantee that every story submitted will be featured.




For the purpose of this form, an NF Hero has a diagnosis of NF. If you are filling out this form on behalf of someone else, please enter your name below.


If you are submitting on behalf on an NF Hero, please indicate how you know or are related.


For follow up questions only.You will not be added to any mailing lists by adding your email and mailing address here.






































If you are currently fundraising for CTF, please include the link to your fundraising page here.


Please submit as many photos of yourself (or of the Hero you are submitting) as you would like to share with us. The pictures that are most useful are about 2MB in size. This can be accomplished with a smart phone or camera. Photos received from a text message or on Facebook are generally too low-resolution for us to use.



If you are new to CTF, please click the box next to any of the following NF Hero opportunities if you would like more information.














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