The Children’s Tumor Foundation works to increase knowledge of neurofibromatosis and schwannomatosis, and you - our NF Heroes - have an important role to play. We’re looking to collect as many Stories of NF as possible for potential future use on the CTF website, newsletters, social media, patient brochures, advocacy efforts, and more. NF may be complicated, but these stories help us better explain what NF is and how it impacts millions of people around the world. Every story of NF is important. We want to know you--your personality, what you do, and what you wish for. Thank you for sharing your story with us!
While we cannot guarantee use and publication of every story, we will be in touch prior to publishing anything you've shared here.