Stories of NF

 

Thank you for sharing your Story of NF

The Children’s Tumor Foundation works to increase knowledge of neurofibromatosis and schwannomatosis, and you - our NF Heroes - have an important role to play. We’re looking to collect as many Stories of NF as possible for potential future use on the CTF website, newsletters, social media, patient brochures, advocacy efforts, and more. NF may be complicated, but these stories help us better explain what NF is and how it impacts millions of people around the world. Every story of NF is important. We want to know you--your personality, what you do, and what you wish for. Thank you for sharing your story with us!


While we cannot guarantee use and publication of every story, we will be in touch prior to publishing anything you've shared here.

 

NF HERO STORY

Please answer the questions below as completely as you like. Please understand that we may only use a portion of what you submit, and we cannot guarantee that every story submitted will be featured.

 
 

For the purpose of this form, an NF Hero has a diagnosis of NF. If you are filling out this form on behalf of someone else, please enter your name below.

 

If you are submitting on behalf on an NF Hero, please indicate how you know this NF Hero or are related.

 

Your contact information

For follow up questions only.You will not be added to any mailing lists by adding your email and mailing address here.

 
 
 
 
 
 
 
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We'd love to hear about your experience. Please share as much, or as little, as you'd like. If you have photos taken before and after, please attach at the bottom of the form.

 
 

Are you currently (or have you recently) participated in a CTF program, such as Shine a Light NF Walk, NF Endurance, Classrooms That Care, Youth Development, NF Camp, Fight NF Your Way and/or a Patient Engagement opportunity? Please share here.

 

Please submit as many photos of yourself (or of the Hero you are submitting) as you would like to share with us. The pictures that are most useful are more than 1MB in size. This can be accomplished with a smart phone or camera. Photos received from a text message or on Facebook are generally too low-resolution for us to use.

Drop your files here
 
 
 
 
 

By filling in the form above, I am giving the Children’s Tumor Foundation permission to share the attached photos and submitted information on the CTF website, blog, social media, brochures, newsletters, and other media. I also understand that submitting this information is not a guarantee that this story will be featured.

 

Thank you for sharing your story with us!