NF Hero Stories
Thank you for sharing your NF Hero story
The Children’s Tumor Foundation works to increase knowledge of neurofibromatosis (NF), and you - our NF Heroes - have an important role to play.
We’re looking to gather as many NF Hero stories as possible for possible future use on the CTF website, newsletters, social media, patient brochures, advocacy efforts, and more. NF may be complicated, but these stories help us better explain what NF is and how it impacts millions of people around the world.
Every story of NF is important. We want to know you--your personality, what you do, and what you wish for. Thank you for sharing your story with us!
NF HERO STORY
Please answer the questions below as completely as you like. Please understand that we may only use a portion of what you submit, and we cannot guarantee that every story submitted will be featured.
NF Hero Name
Submitted by (your name)
For the purpose of this form, an NF Hero has a diagnosis of NF. If you are filling out this form on behalf of someone else, please enter your name below.
Your relationship to this NF Hero:
If you are submitting on behalf on an NF Hero, please indicate how you know this NF Hero or are related.
Your contact information
For follow up questions only.You will not be added to any mailing lists by adding your email and mailing address here.
What type of NF do you have?
NF Hero Date of Birth
Racial Background (optional)
Tell us when you first learned of your diagnosis.
How does living with NF impact your life? How does it impact the plans you have for your future?
You are submitting your NF story here, so we know you have the heart of a fighter! Tell us other ways that you and your family are facing NF like a Hero. (How you stay motivated, how you encourage others, how fighting NF has made you stronger.)
Do you have a favorite motto or aphorism?
What is your favorite song?
Where is your dream vacation destination?
If you could have any superpower, what would it be?
NF doesn’t define who you are, so tell us a little more about yourself, what you do for a living, and what makes you happy!
If you are currently fundraising for CTF, please include the link to your fundraising page here.
Please submit as many photos of yourself (or of the Hero you are submitting) as you would like to share with us. The pictures that are most useful are about 2MB in size. This can be accomplished with a smart phone or camera. Photos received from a text message or on Facebook are generally too low-resolution for us to use.
NEW to CTF?
If you are new to CTF, please click the box next to any of the following NF Hero opportunities if you would like more information.
NF Endurance Adopt-A-Hero Program
Young NF Heroes are paired with athletes at a specific events to encourage them and help them fundraise.
A program way for youth and teens to make a difference in the fight against NF.
A week-long summer camp for teens and young adults living with NF.
In Your Region
Be a Hero at a local NF Walk, create a personal fundraising page, or get in touch with your regional representative.
By filling in the form above, I am giving the Children’s Tumor Foundation permission to share the attached photos and submitted information on the CTF website, blog, social media, brochures, newsletters, and other media. I also understand that submitting this information is not a guarantee that this story will be featured.
I agree to share my NF Hero Story!
Thank you for sharing your story with us!
Send me a copy of my responses
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