Voice of the Community

Voice of the Community

Welcome! To join the group, please answer the following questions. We ask these questions so we can:

Get to know you better,
Customize your role to what you want and need, and
Make sure we have a variety of experiences to make our programs and resources better for everyone.

Your answers will not affect your relationship with NMDP. Group data may be shared internally, but your name and individual answers will not be shared.

Can you speak and read English fluently?*

Select or enter value

Do you have a blood cancer or blood disorder?*

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Are you a direct caregiver for a loved one who has a blood cancer or disorder?

A direct caregiver is a loved one who attends appointments and is involved in the patient's medical care.

Select or enter value

Thank you for your time.

Unfortunately, you do not meet the criteria to join this volunteer group. If you think this is a mistake, please enter your email and I will reach out to you.

1. Your first name*

2. Your last name*

3. Your date of birth*

4. What is your gender identity?

We invite you to share with us how you identify. You do not have to answer if you don't want to.

Gender identity is your personal sense of self and gender, whether that be man, woman, neither, both or somewhere in-between. This volunteer group helps make sure our programs and materials are helpful, accessible and inclusive. We use group data like this to see if we're getting input from all types of people.

5. What is your race?*

Check all that apply.

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Race not listed? Please specify:

6. What is your ethnicity?*

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7. Are you a patient or caregiver?*

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What is your relationship to the patient?

8. What was your (or your loved one's) diagnosis?*

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Diagnosis not listed? Please specify:

9. What year were you (or your loved one) diagnosed?*

10. Did you (or your loved one) have a blood or marrow transplant (BMT)?*

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11. Did you (or your loved one) participate in a clinical trial?*

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12. Can you give a short summary of your experience as a patient or caregiver?

13. What type(s) of projects are you interested in helping with?*

Please note: You do not need to have educational experience in order to participate in any type of project (even research-related projects). We're looking for feedback through the lens of a patient or caregiver so that you and your experiences can help us make our support and resources helpful, accessible, relevant, etc. to patients and families.

You can always change your preferences later as well.

Select all that apply.

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14. What's your preferred email address?*

15. What else would you like to share?

Feel free to share anything else with me that I didn't ask about. Also, if you're interested in areas other than those in question 13, let me know and I'll see what I can do!

Send me a copy of my responses

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