The evolving COVID-19 pandemic is causing rapid and unprecedented changes in inpatient and outpatient policies and procedures across the country. The health risks to patients, staff, and the general public are substantial. Because there appears to be a 1-2 week delay from detection of first cases in a region to implementation of practice changes, NAEC thought it would be useful to provide Center Directors information to assist in planning for these changes before critical situations occur. This survey is designed to collect information about the current status of your epilepsy center operations during COVID-19. We plan for this to be a dynamic resource; we will ask you to update the survey if circumstances require this. We hope that the information that we collect will be helpful to Center Directors as you respond to this crisis. Survey information will be updated on the NAEC website as it becomes available. Survey results will be posted in aggregate on the NAEC website, and sent to you in a "digest e-mail" if you choose. No information from the survey will be posted that would allow identification of an individual center. None of the survey items are required other than the center name and the name and contact information for the person you designate as the contact for urgent communications. In addition, NAEC is working in collaboration with our valued colleagues at the American Epilepsy Society (AES), American Academy of Neurology (AAN), American Clinical Neurophysiology Society (ACNS) and Epilepsy Foundation (EF). Each organization is monitoring resources about COVID-19 and ensuring that it is available to members of all organizations. We thank the Pediatric Epilepsy Learning Healthcare System (pelhs.org), the Pediatric Epilepsy Research Consortium (pediatricerc.com), and the Epilepsy Learning Healthcare System for sharing their similar survey questions and results. When completing the survey, please focus on information that may be helpful to other centers as they adapt to changing circumstances. Thanks!
Choose all that apply.
Indicate the person who should receive update requests and survey results
This information is optional, but will allow us to assess center operations by the hospital COVID status.
Please provide any other details or tips about COVID status at your center.
Please provide any other details or tips about working from home.
Please provide any other details or tips about outpatient clinics. If applicable, indicate if different for children and adults.
Please provide any other details or tips about telemedicine, especially reports on how your telehealth platform is performing.
For the following questions, please use these definitions for triage decisions: - Tier 1, Emergency: Immediate threat of loss of life or permanent disability. - Tier 2, Urgent: Threat to loss of life or permanent disability. Procedures necessary for progression of care for hospital discharge or prevention of a hospital admission within 30 days. - Tier 3, Medically Necessary Within 30 Days: Treatment necessary, but able to be delayed up to 30 days. Delay of surgery may be remediated by medical management. - Tier 4, Medically Necessary But May Wait More Than 30 Days: No significant impact of delay on course of disease. If a case is delayed, an appropriate medical management plan should be in place. - High risk: Those greater than 65 years of age, those with pre-existent low pulmonary reserve, and/or those who are immunocompromised.
Please provide any other details or tips about outpatient or inpatient EEG. If applicable, indicate if different for children and adults.
E.g. limitations on imaging, staff shortages, staff redeployment
Please upload any tools or documents that you would like us to share with other NAEC Center Directors.
National Association of Epilepsy Centers Board