Data Sharing Request Form

Please complete all details in the data sharing request form below and submit. Incomplete forms will not be considered and returned to the requestor. Proposals must be completed in English and will not be reviewed until all information is provided. If a proposal is approved, all parties that will have access to the data per the proposal must sign a data access and use agreement to gain access to the data.

General Information

Has this proposal already been submitted to Ultragenyx?

Lead Requestor Information

Conflict of Interest

Do any of the potential conflicts of interest apply to any of the researchers included in this proposal?

Drag and drop files here or

Research Proposal

Briefly describe in 3000 characters or less the intended use and background information

Data Request Details

Please indicate the data or information requested, list the specific studies, subsets, data fields, and time points being requested.

Does the proposed research require an Ethics Committee or Institutional Review Board (IRB) approval?

Data Sharing Plan

Privacy Notice|Report Abuse