RSVP: Pediatric Rare Disease Summit - Bridging Science and Care

We are pleased to invite you, as one of the families participating in the Children's Rare Disease Collaborative (CRDC), to join us at Boston Children’s Hospital on April 29th, 2025 for our Pediatric Rare Disease Summit - Bridging Science and Care.

Impacting clinical care through research has been one of Boston Children’s Hospital’s top priorities, and the CRDC is one example of how genomic information can lead to better clinical outcomes and accelerate rare disease research.

This one day summit at Boston Children's provides an opportunity for patients and families to learn about the scope and breadth of research-informed care at Boston Children's, including inspiring stories of diagnosis to treatment.

Our exciting agenda will include:

Presentations by physician-scientists, patient families, and patient advocacy groups
Opportunities to present posters for both physician-scientists and patient families
Above all, opportunities to meet and mingle with scientists driving rare disease research

If you have any specific questions before registering please email PRDS@childrens.harvard.edu.

First name*

Last name*

Email address*

Cell phone number*

We will send reminders to your cell phone ahead of the summit

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Will you be bringing additional guests?*

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How many additional guests?

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Additional Guest Details

Guest 1: First name

Guest 1: Last name

Guest 1: Email address

Guest 1: Cell phone

We will send reminders to their cell phone ahead of the summit

Guest 1: Select the description that best applies

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Guest 2: First name

Guest 2: Last name

Guest 2: Email address

Guest 2: Cell phone

We will send reminders to their cell phone ahead of the summit

Guest 2: Select the description that best applies

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Please indicate the name of the CRDC faculty host who invited you*

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Other

Please include what rare diseases you are interested in (or write NA)

Additional questions or comments

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Please be aware that the venue has very limited capacity. Therefore, we kindly ask you to inform us as soon as possible if you plan to attend or if you change your mind, so that we can accommodate everyone who wishes to participate.

I will follow up with PRDS@childrens.harvard.edu if my attendance changes.*

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